Resources

Pompe Disease – Resources

The International Pompe Association (IPA) and some pharmaceutical companies have published a number of excellent articles and brochures about Pompe disease. You can find a selection of these below. Please also take the time to browse the IPA website to find out more about Pompe disease.

Signs and symptoms

Download the latest version of Signs and Symptoms of Pompe Disease by the International Pompe Association.

Breathing Problems

Download the latest version of Breathing Problems caused by Pompe Disease by the International Pompe Association.

Nutrition and Dietary

Download the latest version of Nutrition and Diet by the International Pompe Association.

Exercise and Physical Therapy

Download the latest version of Exercise and Physical Therapy by the International Pompe Association.

Common Health Concerns

Download the latest version of Comon Health Concerns by the International Pompe Association.

What Is Gene Therapy?

Download the latest version of What is Gene Therapy by the International Pompe Association.

The Emotional Impact

Download the latest version of The Emotional Impact by the International Pompe Association.

About Enzyme Replacement therapy (ERT)

Download the latest version of About Enzyme Replacement therapy (ERT) by the International Pompe Association.

Having Children

Download the latest version of Having Children When You Have Pompe Disease by the International Pompe Association.

Finding a treating Physician

Download the latest version of Finding a treating Physician by the International Pompe Association.

Medical Progress in Pompe Disease

Download the latest version of Medical Progress in Pompe Disease by the International Pompe Association.

Adapting to Living with Pompe Disease

Download the latest version of Adapting to Living with Pompe Disease by the International Pompe Association.

Getting the Right Care

Download the latest version of Getting the Right Care by the International Pompe Association.