Links

Information on Pompe disease, treatments and clinical trials are constantly evolving.

Listed below is also a comprehensive list of disability services available in every State in Australia, including the NDIS. If you are having trouble finding resources or not sure where to start finding the right services for you in your state, contact us.

Below are links to some of our partner organisations here in Australia and around the world to help source the latest  and most up to date information.

Clinical Trials and Treatment Access

Clinical Trials within Australia

For a comprehensive list of clinical trials here in Australia, follow the link below. Type pompe disease into search field.

Clinical Trials around the world

For a comprehensive list of clinical trials both here in Australia and overseas, follow the link below. Type pompe disease into search field.

Australian Disability Support Services- State by State

Commercial

International