Information on Pompe disease, treatments and clinical trials are constantly evolving.
Listed below is also a comprehensive list of disability services available in every State in Australia, including the NDIS. If you are having trouble finding resources or not sure where to start finding the right services for you in your state, contact your free nursing support service 1800 369 963
Below are links to some of our partner organisations here in Australia and around the world to help source the latest and most up to date information.