Suzannah is a Senior Nurse Program Manager at Nuevo Health for the Care4Rare patient support program.
Suzannah has worked for several years managing patients with varied and complex health conditions in different clinical settings and she is looking forward to being able to provide support for people living with Pompe.
The types of services Suzannah will be able to provide for you will be:
Answering your medical questions and explaining your test results
Exercise and diet recommendations
Mental health assistance
Support when seeking NDIS services and funding
Explain any genetic testing you have had or need to have
Advocate on your behalf to other medical professionals
This program is FREE for ALL people living with Pompe within Australia. You can access these services whether you are on the Life-saving Drug Program, on a clinical trial, have not yet started or are not on treatment at all.
If you are also looking for advice on testing for Pompe Disease here in Australia, either as a patient or medical professional, you can use this free service.