Extra Support
The Care 4 Rare program is a FREE nursing service for ALL people living with Pompe within Australia. You can access these services whether you are on the Life-saving Drug Program, on a clinical trial, have not yet started or are not on treatment at all.
If you are also looking for advice on testing for Pompe Disease here in Australia, either as a patient or medical professional, you can use this free service.
- Answering your medical questions and explaining your test results
- Exercise and diet recommendations
- Mental health assistance
- Support when seeking NDIS services and funding
- Explain any genetic testing you have had or need to have
- Advocate on your behalf to other medical professionals
See the Care4Rare Patient Brochure for a full list of services.
This service is supported by Sanofi.
Send an Enquiry
Pompe Support Coordinator- Emily Daye
**The 1800 369 963 number is for calls within Australia only. Alternatively, you can email enzyme@care4rare.com.au
**Patients and clinicians in New Zealand can also access this service by email only. enzyme@care4rare.com.au