The Care 4 Rare program is a FREE nursing service for ALL people living with Pompe within Australia. You can access these services whether you are on the Life-saving Drug Program, on a clinical trial, have not yet started or are not on treatment at all.
If you are also looking for advice on testing for Pompe Disease here in Australia, either as a patient or medical professional, you can use this free service.
Answering your medical questions and explaining your test results
Exercise and diet recommendations
Mental health assistance
Support when seeking NDIS services and funding
Explain any genetic testing you have had or need to have
Advocate on your behalf to other medical professionals