Extra Support

Free Patient Support Australia 1800 369 963

The Care 4 Rare program is a FREE  nursing service for ALL people living with Pompe within Australia. You can access these services whether you are on the Life-saving Drug Program, on a clinical trial, have not yet started or are not on treatment at all.

If you are also looking for advice on testing for Pompe Disease here in Australia, either as a patient or medical professional, you can use this free service.

  • Answering your medical questions and explaining your test results
  • Exercise and diet recommendations
  • Mental health assistance
  • Support when seeking NDIS services and funding
  • Explain any genetic testing you have had or need to have
  • Advocate on your behalf to other medical professionals

See the Care4Rare Patient Brochure for a full list of services.

This service is supported by Sanofi.

Send an Enquiry

Pompe Support Coordinator

**The 1800 369 963 number is for calls within Australia only. Alternatively, you can email enzyme@care4rare.com.au

**Patients and clinicians in New Zealand can also access this service by email only. enzyme@care4rare.com.au