Coronavirus (COVID-19) & Pompe Disease
The information below was correct as of 24/3/2020. As the Covid emergency evolves we may not be able to keep up with the ever-changing nature of the situation, therefore the following information is that of a general nature.
If you are on the Amicus trial and can’t for any reason get to the hospital for your treatment, we are advised that the trial protocol allows for a patient to miss a treatment. Please check with your treatment centre. Statement by Amicus regarding clinical trials here
There is lots of information on the web on the virus, the official sites that the association is relying on are below;
Beyond Blue- mental health. Support. Advice. Action.
Individuals who are concerned that they may have been exposed to COVID-19 or need to get tested: Call the National Coronavirus Health Information Line on 1800 020 080 or your local state or territory website listed below.
View the statement from Dr Kishnani from Duke University. The link below has a good Q & A session with Dr Kishnani regarding Pompe Disease and COVID-19.
Q & A with Dr Priya Kishnani (Duke University*) on COVID-19 and Pompe Disease