Contact Australian Pompe Association

Pompe Disease

The Australian Pompe Associate committee are all Pompe patients or Pompe carers and understand the challenges of living with Pompe.

Please contact us if we can be of any assistance

Raymond Saich – Sydney

President

T: 02 9629 2842

Email: president@australianpompe.org.au

Maddy Collicoat – Melbourne

Vice President

Infantile Pompe support for parents

 

Email: vicepresident@australianpompe.org.au

Renee Brown- Perth

Secretary

Patient Support

T: 0432 070 420

Email: secretary@australianpompe.org.au

Beverley Clancy – Melbourne

Treasurer

T: 0417 525 716

Catherine Jenner – Melbourne

Committee Member

T: 0413 662 015

Email: treasurer@australianpompe.org.au

Steven Krinks – NSW

Assistant Treasurer

T: 0423 433 088

E: stevenkrinks@msn.com

Jenna Primmer

Infanile Pompe support for parents

T: 0417 529 412

E: jennaprimmer1@bigpond.com

Tarryn Holland – Melbourne

Committee Member

 

Yvonne Purchase

Committee Member

T: 0478 055 781

E: yepinternational@gmail.com