Contact Australian Pompe Association

Welcome to the Australian Pompe Association

The Australian Pompe Association committee are all people living with Pompe Disease and understand the challenges of living with Pompe.

Please contact us if we can be of any assistance with peer support, finding services, advice and referrals.

GP’s and Specialists are also welcome to call regarding information packs and testing.

Raymond Saich – Sydney

President

T: 0418 966 509

Email: president@australianpompe.org.au

Maddy Collicoat – Melbourne

Vice President

Infantile Pompe support for parents

 

Email: vicepresident@australianpompe.org.au

Secretary

 

Email: secretary@australianpompe.org.au

Catherine Jenner – Melbourne

Committee Member

Patient Support and point of contact

T: 0413 662 015

Steven Krinks – NSW

Treasurer

T: 0423 433 088

E: steven@australianpompe.org.au

Jenna Primmer

Infanile Pompe support for parents

T: 0417 529 412

E: jenna.bree@outlook.com