Members joined us in Sydney from all over the country. This was our first National meeting since the approval of government funding in 2015 so it was a time to celebrate. We were fortunate enough to have Arnold Reuser from the Netherlands who shared with us a wealth of information. We also heard from a range of wonderful speakers on various topics about Pompe disease.
National Meeting 2014
Our inaugural national meeting held in Melbourne was a huge success as many patients and their families from all over Australia met someone else with Pompe disease for the first time. Dr Barry Byrne from University of Florida joined us and shared his experience and extensive knowledge of Pompe disease.
After this meeting it was clear that the Australian Pompe Association could best support our members by bringing everyone together, every two years, to learn from and support each other.