Those who know me will remember a very normal girl growing up, who like many others was not very good at sport, pretty slow at running and maybe a little clumsy.
I have always been a very active person in general and in my 20s and very early 30s would go out dancing all night with friends. I fell pregnant in 2004 and very slowly things began to change.
Infants born with Pompe every year in Australia
No new diseases added to Australian newborn screening in 15 years
A $10 donation can help us to reassure a parent that they are not alone
One drop of blood is all that is required for a pompe diagnosis
Donations over $2.00 to the Australian Pompe Association are tax deductible.